Rare disease

Pupils working tirelessly for “zebra children”

Monika Rammal with her niece Ella

(Bild: zebrakinder.at)

Ella has a rare disease. She is a so-called "zebra child". HAK Innsbruck works tirelessly for her, across all years and classes. And has been doing so for years. Raising awareness makes a big difference for those affected.

Ella has a rare disease, she is a so-called "zebra child". On Rare Disease Day seven years ago - on February 28, 2018 - HAK Innsbruck set an example for Ella by flying hundreds of paper planes with her portrait from the HAK tower. A lot has happened since then - right up to the cross-class and cross-year sponsorship of the KAT6A (the official name of the rare genetic disease) Foundation.

The more networking the better
Ella has now grown up to be a strong and, as far as possible, independent schoolchild. She owes this not least to her enterprising aunt Monika Rammal, who also works at the HAK Innsbruck. Through her many years of activities, the school is raising awareness. The more affected families network, the more clinical pictures can be assigned to this genetic defect, the more research can help to make the lives of the "zebra children" easier or even save them, as people are constantly dying of the consequences in childhood. This can be avoided if medical information is provided in advance.